Another woman in my area diagnosed with Moyamoya as well.

She is a 30 year old mother of four. Our experience is eerily similar...

She and I both started out at the same small local hospital. We were both told we had sinus infections after going to Urgent Care. We both were transfered, by ambulance, to another, bigger hospital. Again, the same hospital. She and I both saw the same Neurologists, and were both misdiagnosed with Vasculitis of the brain. We were both to do the same treatment: six to nine months of steroids (prednisone) and a type of chemotherapy treatment. This is where we saught a second opinion and went to San Fransisco. Unfortunately, she didn't. She went through all of that only to be reassessed after there was no improvement and then diagnosed with Moyamoya. Her doctors aren't specialists and she's had 2 surgeries, one to bypass the Moyamoya and another skin graft, to help correct her incision site. She is still under their care, and is in my thoughts almost constantly. I just wish I could do more.